New York City Clinical Data Research Network
Alternate Titles(s): NYC-CDRN
- Description
- The New York City Clinical Data Research Network (NYC-CDRN) is a project founded by the Patient Centered Outcomes Research Institute (PCORI) and is part of the PCORnet program. The NYC-CDRN longitudinal datasets bring together NYC organizations including medical schools, medical centers, research support organizations, and practice-based research networks. The NYC-CDRN datasets include longitudinally collected clinical, patient-reported, patient-generated. Datasets are available at the de-identified patient level, identifiable patient level, and patient cohort level.
- Publisher
- Geographic Coverage
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New York (State) - New York City
Access
- Restrictions
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Application Required
- Instructions
To request data from the NYC-CDRN, researchers must first submit an initial request form that will receive a preliminary review by Project Operations. A second review will then be conducted by the Research Review and Prioritization Group to assess whether the request meets the following criteria. The researcher will then be notified if they are approved. Next, IRB review and approval must be submitted to NYC-CDRN.
Once the above process is complete, a request for data can be made. Use of data is subject to the signing of a data use agreement and other necessary contracts. Data with no PHI are usually processed within one week, while data with PHI can take between two weeks and two months to process depending on the complexity of the request.